Sunday, April 27, 2008
Monday, April 21, 2008
A year ago this time, this is what Amina looked like:
What a difference a year can make!
Amina was born on Saturday, April 21, 2008 at 1:14pm at Abington Memorial Hospital by Dr. Lisa Geer-Yan. I was induced because she was small for her gestational age and they wanted to get her out into the world to grow. I was in labor for 24 hours! I tried to go natural, but around hour 14 or 15, things started to get a little rocky and I got an epidural. Ameen and Tasha were in the room when I delivered and Tasha took pictures of the delivery (yucko). My mom got there about 2 minutes later. It was a beautiful, amazing and disgusting experience all at the same time.
Despite all of the ups and downs we've had this year, Amina has truly been a blessing and we couldn't ask for a more beautiful, wonderful, special child. She is and will always be our little princess. Thank you to all of you who have shared your time, your gifts, your prayers and everything else with us over the past year. We are looking forward to many, many more wonderful years with Amina and all of you sharing those joys with us.
In case you were wondering, Amina share's her birthday with Andie McDowell, Tony Danza, Queen Elizabeth, Charlotte Bronte, Sarah Michelle Gellar. (Nina Simone and Mark Twain also died on this date).
P.S - I bet you think Amina looks all cute in her little birthday tiara, we'll here's the scene about 2 minutes before:
Don't be fooled by that pretty face!!!
More pictures of Amina and her friends on her birthday:
Saturday, April 19, 2008
Amina has a TEAM of professionals that she see's every week:
- 1 physical therapist that comes to our house
- 1 physical therapist that we see at CHOP
- 1 physical therapist that she sees for aquatherapy
- 1 special instructor that comes to our house
All this is in addition to her neurologist, neurosurgeon, cardiologist, geneticist, pediatrician, Williams Syndrome specialist, and feeding team which consists of a nutritionist, occupational therapist, speech pathologist and nurse practitioner.
They are all very nice people, but some she likes more than others. By the end of the week I can imagine that she's tired of people picking with her, so sometimes she refuses to cooperate. Now, you may be wondering how a 1 year old baby can refuse to do something...I really can't explain it, you just have to see it to believe it.
Here's a few pictures of Amina with some of her "team"
AQUATHERAPY with PT ABBY
PHYSICAL THERAPY with PT KRIPA
Friday, April 18, 2008
Thursday, April 17, 2008
I don't really like sharing my dairy products, but there's nothing cuter than a kid eating ice cream.
Too bad I didn't know last weekend when we took this picture that she had Williams Syndrome and I should limit her calcium intake. Oops.
I'm sure there's many more worse mistakes I could have made. Next time we go to Bredenbeck's, we'll go to the side with the cookies and cakes instead of the ice cream. Its all about creative parenting.
Thembi and I diagnosed her MONTHS ago thanks to Google and Wikipedia. Who needs diagnosticians and genetic tests when there's the internet? We've been referred to another doctor: Dr. Kaplan who specializes in Williams Syndrome.
We are preparing ourselves to raise an overly friendly, emotionally sensitive, musically talented daughter with a bad heart and bad teeth.