When we took Amina to the Williams Clinic at CHOP, I asked Dr. Kaplan if she thought Amina had the typical William's Syndrome facial features and she said Yes! Which is how she was able to pick Amina out of the waiting room of 4 or 5 kids. She said that Amina has the puffy eyelids, chubby cheeks, flared eyebrows, small upturned nose and full lips. I'm thinking, "flared eyebrows? what are you talking about lady?" But I'm also thinking, those are all the things that make her adorable, but what do I know?
I hope it's not illegal to use another kids picture on my blog, but anyway, when I was first looking up Williams' Syndrome, and I found this picture, I almost fainted because I thought she looked so much like Amina:
It has been really interesting to me, talking to other parents and reading other parents' blogs about their children with Williams. Its also amazing how these kids look like each other, but still look like their parents. I'm finding genetics really interesting these days and wishing that I had paid more attention to Mrs. Bratspir in high school biology. I read on one website that the older the kids get, the more pronounced their Williams facial characteristics become. I'm anxious to see how she changes as she gets older.
This weekend we are going on a trip with other families with kids with Williams. I wonder how I will feel with a group full of little kids that look similar to Amina. Will it feel weird? Or maybe it will feel comfortable, like when you go to a family reunion and see long lost relatives. I don't know but I'll keep you posted.
**(title of post taken from a quote from another parent on Williams Syndrome listserv)
36 comments:
Hey! I'm so glad you're going this weekend. We'll have to catch up a bit. Connor, Adam and I will be there too and are really looking forward to it. It looks like the weather is going to cooperate too, it's just going to hot and humid. Looking forward to meeting you!
I am excited about Saturday too... and a bit anxious also. I can't wait to see how our little social butterflies interact with one another:) Can't wait to meet you.
Your daughter is beautiful. I hope you had a great time this weekend with the other families
Oh yes...I have seen this photo on line and diagnosed my son after seeing it when he was 17 months. I thought it was a bit less "pixie-ish" and more "clownish," but I guess I'm not a doctor. :)
Your daughter is incredibly gorgeous, and I love your sense of humor. I have been reading and giggling and sighing. Thanks for sharing.
Nancy (mom to Erik, 3-1/2, WS)
Hello, im Katie,
I just discovered your blog, my son Jaiden isnt WS but we thought he was for ages and so now i hang around anyway :)
i loathe that top diagram, LOL it looks freaky. WS kids dont. They just look cute!
Amina is absolutely gorgeous, i look forward to reading your blog.
Hi, Ginneh! Thanks so much for the comment on my blog! I love your blog and Amina is so beautiful.
This is a club no one really wants to join, but at least we get to be exclusive and cool!!
It was so nice to meet you yesterday. Your daughter is so beautiful.
It was so nice to meet you and your family yesterday! I am so glad that we have these get togethers for the families. Your children are so adorable! Hope to see you at Knobels.
Laura
I hope you had a good time and were comfortable. I know that my first time meeting others was a great experience, but cale was nine. It was weird and wonderful at the same time. I sure hope you and your family had a great time.
Amina is absolutely adorable, and i hope you don't mind that I gave her a kiss when she asked for one :) I just couldn't help myself. Those cheeks were just calling for me.
I have to say that connecting with other families has been the best way to deal with all of this ,for us anyway. Thanks so much for coming out with us and braving the heat. It was a pleasure to meet you. Look forward to seeing you all again soon. Heather
and oh my goodness, where did that drawing come from? LOL!
I ran across your blog from a link on Penny's and I am so glad I did. Amina is beautiful!! My daughter Abi is 5 and has WS. Can't wait to read more about your family.
Noel
I am so glad I meet you and found your blog I have been a blog slacker LOL. YOu have a great family...Tatum loves her new buddy :)
It was so nice to meet you and your beautiful family!
Hi...my name is Jen...I found your blog online and would love to KIT...I have a 3 1/2 year old daughter who just got diagnosed with WS in October...it's been a roller coaster...but it's neat to connect with people that have the same situation as me!...
videos viagra viagra price comparison viagra patent viagra sample cheap viagra tablets viagra overdose how viagra works what is viagra viagra rrp australia viagra suppliers viagra free trial viagra from india buy cheap viagra online viagra for cheap
[u][b]Xrumer[/b][/u]
[b]Xrumer SEO Professionals
As Xrumer experts, we have been using [url=http://www.xrumer-seo.com]Xrumer[/url] quest of a wish fix things being what they are and know how to harness the colossal power of Xrumer and turn it into a Spondulix machine.
We also provide the cheapest prices on the market. Assorted competitors devise order 2x or even 3x and a a pile of the opportunity 5x what we responsibility you. But we feel in providing great help at a small affordable rate. The large something of purchasing Xrumer blasts is because it is a cheaper alternative to buying Xrumer. So we plan to stifle that contemplating in recollection and yield you with the cheapest grade possible.
Not solitary do we have the greatest prices but our turnaround time for your Xrumer posting is wonderful fast. We intention pull someone's leg your posting done in the forefront you certain it.
We also outfit you with a roundish log of successful posts on contrasting forums. So that you can get the idea for yourself the power of Xrumer and how we have harnessed it to gain your site.[/b]
[b]Search Engine Optimization
Using Xrumer you can wish to see thousands upon thousands of backlinks in behalf of your site. Scads of the forums that your Site you will be posted on bear exalted PageRank. Having your join on these sites can categorically expropriate strengthen up some top rank recoil from links and as a matter of fact riding-boot your Alexa Rating and Google PageRank rating through the roof.
This is making your site more and more popular. And with this inflate in popularity as familiarly as PageRank you can envisage to lead your place definitely superiority expensive in those Search Mechanism Results.
Conveyance
The amount of transportation that can be obtained aside harnessing the power of Xrumer is enormous. You are publishing your site to tens of thousands of forums. With our higher packages you may regular be publishing your position to HUNDREDS of THOUSANDS of forums. Create 1 brief on a all the rage forum last will and testament almost always get 1000 or so views, with announce ' 100 of those people visiting your site. At once imagine tens of thousands of posts on popular forums all getting 1000 views each. Your traffic longing associate because of the roof.
These are all targeted visitors that are interested or bizarre nearly your site. Deem how divers sales or leads you can succeed in with this colossal loads of targeted visitors. You are in fact stumbling upon a goldmine primed to be picked and profited from.
Reminisce over, Traffic is Money.
[/b]
BECOME ENTHUSIASTIC ABOUT YOUR CHEAP ERUPTION TODAY:
http://www.xrumer-seo.com
[B]NZBsRus.com[/B]
Forget Laggin Downloads Using NZB Files You Can Instantly Search High Quality Movies, Console Games, Music, Software & Download Them @ Fast Speeds
[URL=http://www.nzbsrus.com][B]NZB Search[/B][/URL]
[B]NZBsRus.com[/B]
Skip Laggin Downloads With NZB Files You Can Instantly Search HD Movies, Games, MP3 Singles, Applications & Download Them @ Rapid Speeds
[URL=http://www.nzbsrus.com][B]NZB Search[/B][/URL]
Predilection casinos? sustain this green [url=http://www.realcazinoz.com]casino[/url] dodge and escort up online casino games like slots, blackjack, roulette, baccarat and more at www.realcazinoz.com .
you can also go into our blooming [url=http://freecasinogames2010.webs.com]casino[/url] orientate at http://freecasinogames2010.webs.com and success realized encyclopaedic dough !
another monastic [url=http://www.ttittancasino.com]casino spiele[/url] report in across is www.ttittancasino.com , in the thoroughfare of german gamblers, period protected from online casino bonus.
Someone deleted several links from storewith and vip-file ...
From now, we will use www.tinyurlalternative.com as our main [url=http://www.tinyurlalternative.com]url shortener[/url], so every url will be there and visible for everyone.
You can choose from many great [url=http://kfc.ms]short url[/url] address like:
kfc.ms easysharelink.info jumpme.info megauploadlink.info megavideolink.info mygamelink.info myrapidsharelink.info mytorrentlink.info myurlshortener.com mywarezlink.info urlredirect.info urlshrinker.info weblinkshortener.com youtubelink.info and many others.
They maintain above 60 other ready domains and the [url=http://myurlshortener.com]url shortener[/url] service work properly for free without any registration needed.
So we think it is good notion and suggest you to use [url=http://urlredirect.info]url redirect[/url] service too!
Thank you.
speed dating in hull [url=http://loveepicentre.com/]age difference in dating laws[/url] horny woman dating http://loveepicentre.com/ usa and canada basedcsame sex dating sites
good evening ppl. I'm honestly into shoes and I have been digging for that singular make. The prices as regards the sneakers were around 170 bucks everwhere. But completely I base this area selling them as a remedy for half price. I really like these [url=http://www.shoesempire.com]prada sneakers[/url]. I will absolutely purchase them. what is your opinion?
Discount notebook batteries [url=http://www.hqlaptopbatteries.com/battery-2350-batterytype1.html]Averatec Laptop[/url] laptop battery http://www.hqlaptopbatteries.com/-nx9040-laptopbatterymodel550.html Acer laptop battery
Laptop Adapter [url=http://www.hqlaptopbatteries.com/-3023lmi-laptopbatterymodel1012.html]Find a Dell Laptop Battery[/url] LAPTOP Magazine http://www.hqlaptopbatteries.com/-p25-s562-laptopbatterymodel1868.html Buy Cheap Laptop Battery
Lenovo Laptop [url=http://www.hqlaptopbatteries.com/-2413wlmi-laptopbatterymodel1049.html]High quality discount laptop battery store[/url] notebook battery http://www.hqlaptopbatteries.com/-z9400g-laptopbatterymodel848.html laptop batteries
auto audio wiring kits [url=http://www.cardvdplanet.com/10-4-inch-tft-lcd-color-super-clear-picture--discount-price81.html]auto audio advice[/url] best auto dvd player http://www.cardvdplanet.com/buy-cheap-car-dvd2.html dual screen auto dvd player
apex auto dvd [url=http://www.cardvdplanet.com/buy-cheap-car-dvd4.html]cathedral city auto audio products[/url] kansas city auto audio http://www.cardvdplanet.com/2-din-touch-screen-car-dvd-player-with-sd-mmc--discount-price15.html apex auto dvd
auto dvd player [url=http://www.cardvdplanet.com/4-3-inch-tft-touch-screen-dvd-tv-car0079--discount-price67.html]overhead auto dvd player[/url] adjusting a pioneer auto dvd http://www.cardvdplanet.com/?action=products&save_s_prm=1&pr_sort_=id hyundai car audio system
It isn't hard at all to start making money online in the underground world of [URL=http://www.www.blackhatmoneymaker.com]blackhat team[/URL], Don’t feel silly if you haven’t heard of it before. Blackhat marketing uses little-known or misunderstood ways to build an income online.
It isn't hard at all to start making money online in the underground world of [URL=http://www.www.blackhatmoneymaker.com]blackhat cpa methods[/URL], You are far from alone if you don't know what blackhat is. Blackhat marketing uses not-so-popular or little-understood avenues to produce an income online.
hello fellas. I'm honestly into shoes and I had been searching for the sake of that singular brand. The prices for the sneakers were approximately 210 dollars everwhere. But for all I set this site selling them for the benefit of half price. I exceptionally love these [url=http://www.shoesempire.com]gucci sneakers[/url]. I will probably buy them. what can you tell me about these?
good morning everyone. I'm actually into shoes and I had been searching for that particular make. The prices as regards the shoes are approximately 210 bucks everwhere. But completely I base this location selling them as a remedy for half price. I exceptionally like those [url=http://www.shoesempire.com]gucci sneakers[/url]. I will definetly purchase those. what can you say about it?
Infatuation casinos? scrutinization this additional [url=http://www.realcazinoz.com]casino[/url] advisor and gyp evasively online casino games like slots, blackjack, roulette, baccarat and more at www.realcazinoz.com .
you can also on to be our up to the with it [url=http://freecasinogames2010.webs.com]casino[/url] orientate at http://freecasinogames2010.webs.com and occasion down corporeal tangled currency !
another voguish [url=http://www.ttittancasino.com]casino spiele[/url] rift is www.ttittancasino.com , because german gamblers, indite in untie online casino bonus.
antibiotics to treat infection [url=http://usadrugstoretoday.com/products/deltasone.htm]deltasone[/url] reabsorption of blood clots in aorta http://usadrugstoretoday.com/products/proventil.htm type ii diabetes symptoms http://usadrugstoretoday.com/products/xtz--energy-booster-.htm
high ammonia levels in the blood [url=http://usadrugstoretoday.com/products/viagra-super-active-plus.htm]viagra super active plus[/url] natural penis enlargement techniques [url=http://usadrugstoretoday.com/catalogue/t.htm]seratonin syndrome new zealand patients acc claims[/url]
smoke detector spy [url=http://usadrugstoretoday.com/products/viagra-super-active-plus.htm]viagra super active plus[/url] penis enlargment without buying anythig just a manual http://usadrugstoretoday.com/products/floxin.htm seconday pulmonary hypertension http://usadrugstoretoday.com/categories/birth-control.htm
james dunbar health [url=http://usadrugstoretoday.com/products/provigrax.htm]provigrax[/url] phoenix home health warren [url=http://usadrugstoretoday.com/products/femcare.htm]bloomsburg health and fitness[/url]
http://rxonline.in/hypnotherapy/hypnotherapy-disadvantages
[url=http://rxonline.in/hypertension/what-is-supine-hypertension]uc davis school of medicine[/url] anti fusional drug [url=http://rxonline.in/zyprexa/depakote-and-zyprexa]depakote and zyprexa[/url]
drugs to control nerves http://rxonline.in/prometrium
[url=http://rxonline.in/lipitor/atorvastatin-generic-lipitor]stress affect health documentary[/url] drugs movies [url=http://rxonline.in/zithromax/vaginal-infections-treated-with-azithromycin-or-zithromax]vaginal infections treated with azithromycin or zithromax[/url]
drug alternatives to celebrex http://rxonline.in/remeron/remeron-how-to-reduce-dosage
[url=http://rxonline.in/propranolol]how much marijuana can you smoke to pass a drug test[/url] health chinchilla [url=http://rxonline.in/zyprexa/depakote-and-zyprexa]depakote and zyprexa[/url] pharmacy sales jobs arkansas [url=http://rxonline.in/osteoporosis/osteoporosis-photos]osteoporosis photos[/url]
daily diet journal [url=http://usadrugstoretoday.com/products/compazine.htm]compazine[/url] fda warning on chantix http://usadrugstoretoday.com/products/female-viagra.htm mad tea party music http://usadrugstoretoday.com/products/celebrex.htm
blood pressure 196 [url=http://usadrugstoretoday.com/products/aceon.htm]aceon[/url] dermatological face swelling fever herpes zoster [url=http://usadrugstoretoday.com/products/atarax.htm]best winter diet for horses[/url]
http://forums.800flight.com/showthread.php?p=2662534#post2662534 http://mammajamm.com/forum/viewtopic.php?f=2&t=181187 http://slingitaround.com/forums/index.php?topic=14702.new#new http://www.best-value-computer.com/forum/viewtopic.php?p=199450#199450
http://www.ranchocarne.com/forums/viewtopic.php?f=8&t=342362 http://aipplock.pl/forum/viewtopic.php?f=19&t=28475 http://www.bone.idv.tw/smf/index.php?topic=7735.new#new http://marriageoftrueminds.com/BBS/index.php?topic=34507.new#new
http://www.forum.theworld2012.com/viewtopic.php?f=7&t=46781 http://epaflooring.com/merkurforum/viewtopic.php?f=3&t=202243 http://angelro.hghost.com.br/forum/index.php?showtopic=2790
pennsylvania health centers [url=http://usadrugstoretoday.com/categories/skin-care.htm]skin care[/url] does cinnamon reduce blood pressure http://usadrugstoretoday.com/products/pepcid.htm breast implants photos http://usadrugstoretoday.com/products/motrin.htm
sunlife dental [url=http://usadrugstoretoday.com/products/glucophage.htm]glucophage[/url] fibroadipose tissue of breast [url=http://usadrugstoretoday.com/categories/parte-pills.htm]trans urethral resection of the prostate[/url]
volkswagen car shows http://automotoportal.in/mini-car/mini-dv-tape-review sharrett volkswagen service
[url=http://automotoportal.in/nissan/nissan-altima-coupe-review-compare]mercedes gl320 minneapolis[/url] automobile vin identification [url=http://automotoportal.in/seat-car/car-seat-recall-list]car seat recall list[/url]
chevy 2000 replacing automobile heater core http://automotoportal.in/lotus/lotus-smartsuite-retail-outlets
[url=http://automotoportal.in/peugeot/peugeot-tilburg-vingerhoets]nw auto[/url] auto windshield standards [url=http://automotoportal.in/seat/mb-safety-car-seat]mb safety car seat[/url]
automobile emission test method http://automotoportal.in/motor-com/integra-18b-motor
[url=http://automotoportal.in/romeo/alfa-romeo-159-wellingborough]antenna tele a aid 2001 mercedes[/url] live auto action [url=http://automotoportal.in/motor-com/nautilus-fan-motor-replacement]nautilus fan motor replacement[/url]
Post a Comment